Welcome to the Bile Duct Defenders Team Page
Our mission is to facilitate treatments for PSC by raising funds and advocating for PSC patients
As many of you know, our younger daughter Kate was diagnosed with Crohn's disease in 2017, when she was 14 years old. In 2020, when Kate was 18, she received an even more serious diagnosis. Kate learned that she also has primary sclerosing cholangitis, or PSC. PSC is a rare liver disease that causes the bile ducts to become scarred, narrowed and eventually blocked, and leads to liver failure. PSC can also cause a number of serious, sometimes life-threatening side effects. Currently, there are no approved treatments for PSC other than an eventual liver transplant.
Kate's PSC diagnosis has had a tremendous impact on our family. Although Kate has an excellent team of doctors at Massachusetts General Hospital, there is little they can do to resolve her symptoms or slow the progression of her disease. As for the family, while we try to help Kate achieve the best quality of life possible, we worry constantly about her short-term health and her long-term future. PSC has become a daily presence in our lives and we are desperate to find a cure.
Amy, Al, Kate and Sophie
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